Inspirational Stories

Hearing stories from other patients and caregivers regarding lymphoedema can be very encouraging. Watch encouraging and motivational videos here.

Deborah Cordner Carson

“I’m probably more of an athlete than I would have been if I didn’t have lymphoedema.”

  • Secondary lower extremity lymphoedema
  • Competed in the CrossFit Games three times
  • Won the Spirit of the Games Award in 2012

Cynthia "MsCjay" Judge

"To me, the lymphoedema community is my family. That is where I'm the happiest"

  • Secondary upper extremity lymphoedema
  • Patient Advocate and co-host of the Lymphoedema Mavens Podcast

Robin Miller

"People can sympathise with you, but no one can empathise they actually have it because they don't really understand."

  • Secondary upper extremity lymphoedema
  • Patient advocate

Tristen and Tammy Reid

"Tristen is a real role model for a lot of these kids... These kids are seeing that you're not going to be limited by this, you just have to take care of yourself so that you can."


  • Primary, bilateral lower extremity lymphoedema, born with swelling
  • Patient advocate


  • Tristen's mother
  • Received training in Manual Lymphatic Drainage (MLD) to help her son
  • Parent advocate

Amy Santiago

“Share your story with others. You’ll be relieved, and through that you will inspire millions.”

  • Primary bilateral lower extremity lymphoedema
  • Misdiagnosed for 18 years
  • Patient Advocate and Mrs Florida International